The Official Patient"s Sourcebook on Stiff-Person Syndrome A Revised and Updated Directory for the Internet Age by ICON Health Publications

Cover of: The Official Patient

Published by ICON Health Publications .

Written in English

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Book details

The Physical Object
Number of Pages108
ID Numbers
Open LibraryOL7581630M
ISBN 100597830878
ISBN 109780597830877
OCLC/WorldCa171141485

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The Official Patient's Sourcebook on Stiff-Person Syndrome: A Revised and Updated Directory for the Internet Age [Icon Health Publications] on *FREE* shipping on qualifying offers. The Official Patient's Sourcebook on Stiff-Person Syndrome: A Revised and Updated Directory for the Internet AgeReviews: 1.

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Stiff-Person syndrome, also known as Stiff-Man syndrome or Moersch-Woltman syndrome, is a rare neurological disorder that affects the central nervous system. If you or a loved one is suffering from this debilitating disorder, this book gives you all of the information you need to know about the causes, tests and treatments to help get your life.

The Official Patient’s Sourcebook on Stiff-Person Syndrome: A Revised and Updated Directory for the Internet Age Icon Health Publications Stiff Person Syndrome. The Icon Health Publication Group publishes a number (24) of guides on very rare diseases (like IBM and CIDP) and also on some exceedingly rare diseases (for example, Stiff person [man] syndrome).

So, as a person with IBM, I was anxious to read a book devoted to the topic. The book was a disappointment. Unfortunately, the book is not really /5(4). Stiff-person syndrome (SPS) is a rare neurological disorder with features of an autoimmune disease.

SPS is characterized by fluctuating muscle rigidity in the trunk and limbs and a heightened sensitivity to stimuli such as noise, touch, and emotional distress, which can set off muscle spasms. OBJECTIVE To investigate whether the stiff limb syndrome may be separated from the stiff man syndrome and progressive encephalomyelitis with rigidity on simple clinical grounds, and whether such a distinction has implications for aetiology, treatment, and prognosis.

METHODS Twenty three patients referred over a 10 year period with rigidity and spasms in association with continuous motor unit. The Stiff Person is a website that provides support and information regarding stiff person syndrome (SPS).

Their mission is to help people better understand and learn how to gather information to share with their health care providers to facilitate a diagnosis. Personal stories about living with SPS are also shared.

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Stiff person syndrome (SPS) affects only about one or two in a million people. Being diagnosed with this very rare condition can leave patients and families with many questions and few answers.

The Stiff Person Syndrome Center at Johns Hopkins’ Department of Neurology can offer clarity, effective symptom management and hope for the future. The Official Patient's Sourcebook on Inclusion Body Myositis: A Revised and Updated Directory for the Internet Age and also on some exceedingly rare diseases (for example, Stiff person [man] syndrome).

So, as a person with IBM, I was anxious to read a book devoted to the topic. The book was a disappointment. Unfortunately, the book is not. Members May Share Links To: movies, YouTube videos, documentaries, books and/or audio books (all of which MUST BE related to SPS, chronic illnesses, rare diseases, healing, etc.).

Members May Share: inspirational and/or chronic illness quotes and/or photos raising SPS awareness, etc. PLEASE DO NOT ASSUME that all Member photos, posts, etc., may.

This study was approved by the Mayo Clinic institutional review board (approval ). We searched the Mayo Clinic's computerized diagnostic index for patients (January to December ) with the following diagnoses: stiff-man syndrome, stiff-limb syndrome, stiff-person syndrome, and progressive encephalomyelitis, rigidity, myoclonus.

The Official Patient's Sourcebook on Inclusion Body Myositis: A Revised and Updated Directory for the Internet Age by Icon Health Publications () on *FREE* shipping on qualifying offers. The Official Patient's Sourcebook on Inclusion Body Myositis: A Revised and Updated Directory for the Internet Age by Icon Health Publications ()Reviews: 4.

The syndromes associated with the metabotropic receptor antibodies are much rarer and often can be paraneoplastic—mGluR1 (cerebellar degeneration) and mGluR5 (Ophelia syndrome) being the ones. Intranasal midazolam for treating acute respiratory crises in a woman with stiff person syndrome Giuseppe Cosentino, Marcello Romano, Margherita Algeri, et al.

Neurology - Neuroimmunology Neuroinflammation Ap Stiff person syndrome (SPS) is a progressive syndrome characterized by recurrent episodes of severe muscle stiffness, rigidity, and painful spasms in the trunk and limbs. The age that symptoms begin can vary, but most people start experiencing symptoms between ages 30 and Spasms can be prolonged and extremely forceful, with the ability to generate enough force to fracture bone.

Stiff-person syndrome (SPS), also known as stiff-man syndrome (SMS), is a rare neurologic disorder of unclear cause characterized by progressive rigidity and stiffness. The stiffness primarily affects the truncal muscles and is superimposed by spasms, resulting in postural deformities. Chronic pain, impaired mobility, and lumbar hyperlordosis are common symptoms.

(late posting), Washington, DC, USA, Disability in Patients With Stiff Person Syndrome May Progress Faster Than Thought.Ames, IA, Iowa State student talks healthcare issues.Herriman, UT, USA. Brenda Eyre, Brenda passed away in her home surrounded by family. She died from complications of a bone marrow.

BOOKS. Icon Health Publications. The Official Patient's Sourcebook on Stiff-Person Syndrome: A Revised and Updated Directory for the Internet Age. San Diego: Icon Group International, Larsen, Povl K., J. Egeberg, and A. Schousboe. Glutamate and GABA Receptors and Transporters. Taylor & Francis, PERIODICALS.

Stiff Person Syndrome. Stiff person syndrome presents as stiffness of the limbs and/or trunk. Patients lack sensory deficits, abnormal reflexes, or upper motor neuron signs, so that Parkinson’s disease or a related disorder is suspected.

An autoimmune basis is confirmed by positive serological tests and/or improvement with immunotherapy. - Explore Beth Reed's board "Stiff Person Syndrome", followed by people on Pinterest.

See more ideas about syndrome, stiff, person pins. paraneoplastic stiff person syndrome (reported in 5% of patients) 1,4 subgroup of stiff person syndrome associated with amphiphysin antibodies primarily in females mean age 60 years with breast cancer and cervical spine region stiffness described in case series of 11 patients ( Neurology Dec 9;71(24)).

- Explore Welcome Wardville's board "Stiff Person Syndrome", followed by people on Pinterest. See more ideas about Syndrome, Stiff, Person pins. Books for People With Signs and Symptoms of Sarcoidosis: The Official Patient’s Sourcebook on Sarcoidosis James N.

Parker. Living With Sarcoidosis & Other Chronic Health Conditions Gilbert Barr Jr. Me & Sarcoidosis: A Lifetime Partnership: Revised Edition A Patient’s Story About Living With A Chronic Health Condition. Mar 2, - My biggest fight. See more ideas about syndrome, stiff, person pins.

•Stiff-Person Syndrome (SPS), also known as Stiff-Man Syndrome, is a rare neuromuscular disorder characterized by rigidity; identified by Moersch and Woltman in •Diagnostic criteria, still in use today, were first set by Gordon in (Figure 1).

•Characterized by rigidity in axial, then limb muscles, co-contracture of both agonist and. Stiff person syndrome is an important autoimmune mediated disorder to consider in patients with unexplained pain and muscular rigidity.

We review the proposed diagnostic criteria, common clinical features, and important serologic and electrophysiological tests to aid in diagnosis as well as medical and rehabilitative therapeutic options. In addition, we discuss the identification and. Stiff-person syndrome (formerly called stiff-man syndrome) affects the central nervous system (CNS) but has neuromuscular manifestations.

Most patients with stiff-person syndrome have antibodies against glutamic acid decarboxylase (GAD), the enzyme involved in the production of the inhibitory neurotransmitter GABA (gamma-aminobutyric acid). The stiff-man syndrome (SMS, also known as stiff-person syndrome) is an autoimmune disorder characterized by stiffness and spasms affecting muscles of limbs and/or axial regions.

Rarely reported in childhood and adolescence, SMS may be underrecognized but should be considered in children presenting with a hypertonic or hyperekplectic phenotype.

Stiff Person Syndrome (SPS), is a very rare neuroimmunologic disorder characterized by progressive muscle pain, rigidity, stiffness, and spasms. It can be very debilitating if misdiagnosed or not recognized in time.

Herein we discuss a case of a female. A paraneoplastic syndrome in a patient with a known tumor, even one thought to be cured, should prompt an investigation into whether the tumor has returned or spread.

Antibodies to GAD65 and Amphiphysin target intracellular synaptic proteins and associate with stiff person syndrome. Stiff-person syndrome (SPS) is a disorder characterized by fluctuating muscle rigidity and painful spasms that occur spontaneously or are triggered by diverse stimuli.

1,2 Partial or segmental forms of the disorder, such as stiff-limb syndrome (SLS) and the more severe disease called progressive encephalomyelitis with rigidity and myoclonus (PERM), are usually considered within the spectrum of.

The Diagnosis And Management Of Stiff Person Syndrome. A year-old Caucasian male affected by the classic anti-GAD-antibody related SPS. History: Patient X is a year-old Caucasian male affected by the classic anti-GAD-antibody related SPS. Stiff-person syndrome (SPS) is a rare condition — fewer than one in a million people have it.

SPS causes muscle rigidity and prolonged — often severe — muscle spasms. These spasms can be caused by factors in the patient’s environment, such as loud noises, being touched, or emotional distress.

Sixty percent of patients have a positive autoantibody test. To confirm a diagnosis of autoimmune hepatitis, a liver biopsy is taken, which tests a small sample of liver tissue for the type of hepatitis and the extent of the damage.

As well, raised levels of gamma globulin is found in more than eighty percent of patients. My neighbor's brother was recently diagnosed with stiff-person syndrome. Can you tell me what it is and how it's treated?-R.D., LA.

Denise Drummond Hayes, MSN, RN, CRNP, replies: Formerly called stiff-man syndrome and sometimes called Moersch-Woltman syndrome, stiff-person syndrome (SPS) is a rare acquired neurologic disorder.1 Three SPS subcategories or variants have been described, but.

Stiff person syndrome (SPS) is a rare autoimmune disease. Most patients have high-titer antibodies against glutamate decarboxylase (GADAb), which is without practical value in disease monitoring.

Benzodiazepines are the first line drugs, but long-term use is not well characterized. Objective: To describe cases of Stiff-Person Syndrome (SPS) that clinically worsened following initiation or increase in dosage of serotonin-norepinephrine reuptake inhibitors (SNRIs).

We provide a potential mechanism for these effects and suggest a paradigm for the management of patients with SPS with pain complaints treated with SNRIs.

Background: SPS is a rare neurological disorder. Stiff person syndrome (SPS) is a rare disorder, characterised by fluctuating rigidity and stiffness of the axial and proximal lower limb muscles, with superimposed painful spasms and continuous motor unit activity on electromyography. Although rare in general neurology practice, once observed it is unforgettable.

The general neurologist may see only one or two cases during his or her career. BOOKS. Staff. The Official Patient's Sourcebook on Miller Fisher Syndrome: A Revised and Updated Directory for the Internet Age. San Diego: Icon Group International, PERIODICALS.

Derakhshan, I. "Recurrent Miller Fisher Syndrome." Neurol India. (June ): OTHER. NINDS Miller Fisher Syndrome Information Page.Stiff Person Syndrome (SPS) is an autoimmune and neurological disorder with no known cause that can make the muscles in the torso and limbs alternate between rigidity and spasms.

Even though the cause of this extremely rare disease is still unknown, researchers suspect that it may be the result of an autoimmune reaction where the body attacks.

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